Asperger’s Syndrome is an autism
spectrum disorder hallmarked by social impairment, obsessive interests, and
intact cognitive and language abilities. I never knew that it existed or that I
had it until I was enlightened to its existence by a fellow Aspie and saw
myself clearly reflected in its symptoms and signs.
Growing up, I was always aware that
I was just a little bit different. I didn’t make friends easily. I wanted
friends. I tried to play with others and be outgoing in preschool and pre-K but
I usually ended up as “that weird kid who latches on to people who want nothing
to do with her”. It was almost like when I talked to other kids my age I was
speaking a different language. No, that’s not exactly accurate, it was more
like… I was speaking a different dialect of the same language. Their slang and
subtext, ulterior meanings and that sort of thing… just didn’t make a scratch
of sense to me. I also, for quite a while, but I’m getting better at this now… could
not understand sarcasm. To me it seemed the same thing as deception because I
couldn’t comprehend that the tone of voice gave it away and entailed the
opposite meaning. I saw no logical reason for deception and it wasn’t until I’d
been battered by ostracizing and emotional and psychological bullying that it
ever dawned on me that somebody would have a reason to lie to me or anyone
else.
After I was hurt by deception and
the underhanded bullying tactics used by elementary school girls I became too
hardened. I didn’t allow the slightest opportunity to be stung again but what I
didn’t realize at the time was that did far more harm than good. I was being
overly defensive and do to the fact that I hadn’t the slightest clue how to be
subtle and they did, I probably appeared to everyone else as the aggressor. I
simply wasn’t very good at their game and frankly the hall aids usually (much
to my dismay) sided with those jerks.
The thing was, this entire time
where me inability to understand these things was making my life harder, I was ardently
convinced that I was the “normal” one and everyone else was weird. As Butch
Cassidy once said: “I got vision and the rest of the world’s wearing bifocals”.
One thing about me is that I am
profoundly self-aware. I spend much of my idle time reflecting on my actions
and emotions and this talent allowed me to figure out relatively early on, that
I wasn’t destined for the top of the social ladder. I certainly wanted friends
but I didn’t want the sort of friends who would never truly understand me, who
wouldn’t even try to but instead would just allow me to orbit on the outside of
their circle. What I desired most were true friends, the kind you could bear
your soul to and be unafraid that they would abandon you. Sure enough, in time
such a motley crew did come together, one by one, from a girl I met when I was
six who is now like a sister, to the friend I met just three years ago when I
was sixteen. Each is odd in their own unique way. This made life interesting
and perhaps partly because we had all been bullied and cast out by the majority
of the mainstream and perhaps because some of the others had Aspie tendencies
of their own… we bonded into almost a tribe of our own. We even came up with a name.
The Island of Misfit Toys. Our Island included Kirsten the Innocent, Kiami the
wannbe dictator, Chira the Dark Artist, Zack the walking Encyclopedia, Becky
the quiet one, and Chantal the well-meaning but occasionally annoying
bible-thumping evangelical… To call us an unlikely bunch is to say the least of
it, but these are the people who I still call my friends.
I’m not just bad at reading people
but I am even prone to sending out mixed or inaccurate signals to others, by
that I mean that my expression, body-language, and tone of voice do not always accurately
reflect what I mean to communicate… this has led to some unintentional hurt
feelings and unnecessary arguments, particularly with my parents, who like me a
year ago, have no understanding that it’s not my fault and therefore they don’t
always believe me when I apologize and tell them that I didn’t mean to
disrespect them.
My social confusion aside, another
thing that set me apart pretty early on is the fact that I was never quite in
sync with the interests of other girls my age. I never saw the point of trends
and found following them to be well…stupid… and an exhausting waste of time.
This applied to everything from general interests to TV to clothes to favorite
subjects in school. My earliest obsession was with dinosaurs, then tigers, then
the now-classic anime Sailor Moon,
then two years later it was Poke’mon, followed
by Avatar the Last Airbender, which
is still a favorite show of mine, then NCIS
and most recently Criminal Minds. At
the same time I’ve always had a love of history, and my special interests on
that front include the American Revolution, Pre-History around the world, 3
Kingdoms period China, and Tsarist Russia. My most recent special interest is
Theology. Once I get interested in something I throw myself into it and really
don’t loosen my grip on it until I have something new with which to replace it.
Sometimes I find that when in a conversation that is not about any of these
areas of interest I tend to either zone out and wish I was wearing a T-shirt
that said “I really wish I weren’t here right now.” Or I tend to try to
redirect the conversation toward an area of interest. It’s not that I mean to
be rude, not in the slightest, it’s just the simple fact that I’m bored out of
my mind, so bored in fact, that I usually assume I’m doing everyone a favor by
making more interesting conversation. Sometimes I’m more aware of this than at
other times and will choose the “zone out” option or even attempt to
participate in discussions that I have no interest in whatsoever, in an effort
to be polite.
One thing I find to be both a
blessing and a curse, is that my brain seems to be wired for history, theology,
philosophy, and literature… and math, physics, and chemistry neither make sense
no interest me in the slightest. Which causes problems when you need school
credit in the things for which you are not wired.
Then there is the matter of sensory
issues, which thankfully in my case, are relatively minimal. There are certain
sounds I can’t stand, metal on bone, metal on metal, chalk on a chalk board
(thank God for dry erase boards), I don’t like crowds or strobe lights, and I’m
really bothered by uninvited touch. So you can imagine what it was like for me at
Rec Night in middle school, a school dance but with food and games and casual
attire... the music was way too loud and the area far too crowded plus even though
my light and color issues are really very minor the chaotic flashing,
multi-colored strobe lights were a nightmare, that whole environment was hell.
In conclusion, while it hasn’t
always been easy, and while sometimes I wish that people like myself were the
accepted norm. Even now, at last understanding why I am this way, I don’t think
of it as there being something wrong with me, but instead that it is who I am.
Hi,
ReplyDeleteI am upyr's friend. Just so you know I'm not such a random viewer of your blog.
This is a nice post. I am fascinated by how your experience reflects a lot of mine, especially the sarcasm bit. I am sarcasm deaf and blind. I can deal a little bit of it, but I come off as extremely gullible because I don't really catch on.
I also graft onto a topic of interest and don't let go. One of my biggest enemies is the ability to follow through on projects. So while I will have intense interest in something, I usually become bored with it after a while. I need a lot of mental stimulation to function "normally."
I used to be in Seminary to become and Orthodox Priest, so naturally you understand that the complexity of Theology would stimulate me. And it did. For a very long time.
Anyway, I also wanted to write by saying while I think we have "autistic tendencies" or "some symptoms of Aspergers," I'd be careful about self-diagnosis. Being Orthodox, you understand the necessity of a Spiritual Father to help guide you in your spiritual journey. So too is the same with diagnosing yourself with psychological issues.
So, I encourage you to go see a qualified psychologist or psychiatrist and do let us know what they find.
Cheers!
Jon
As you know I had similar expeirnces- the Upyr is a refeence to an old email adress upyr1@yahoo.com Upyr you you may know is Vampire in old Russian.
ReplyDeleteas you know I had a lot of similar experinces- I believe in school the staff didn't understand my situation.
A classic example in my view was my plan to deal with math.
I was and am interested in aviation there was a distance ed class offered by OU that was over avation. The principle who needed to sign off refused to do so because of my failures in math class.
My basic argument for being allowed to take the class was that the achievment tests showed I had the logical aptitude but it was actually doing the work that was the problem.
So perhaps by working on a subject I was interested in I would actually learn math since it wouldn't be this abstract thing but it would become something I wanted to learn and use.
The principle also shot down my request to take Russian via OU's distant ed because of my scores in English class.
I took Russian I learned grammar.
One of the people I met that has been a bit of an inspiration was a CIOS professor in anchorage. the guy had been a programmer since the 1960's
he was trained by the military and claimed he had never passed an algebra class in his life.
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ReplyDeleteVery well written. I also self analyze and find it odd that the general public doesn't seem to reflect on themselves and their actions. Although I never had social issues, I am finding that as an adult I am far less tolerant and choose not to walk the same beat at the "norm". I am a teacher, a lover and reenactor of history, and when I take on an interest (usually something tangible) I dive into it head first. My crowds of friends were very odd and eclectic, as were my interests. Never the "normal" girlie girl. Thanks for sharing your insight. Never knew that it was a trait of Asperger’s . Interesting. :)
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